CVI, Motherhood, and the Power of Story: A Conversation with Rachel Worden
In this episode, Sarah talks with Rachel Worden, founder of Little Dandelion Press and mom to Moira, about the journey that reshaped the way she sees childhood, vision, and learning. Rachel shares how her daughter’s CVI and rare genetic condition set her on a path she never expected, from searching for answers to creating books that finally made sense for her child. Rachel opens up about the early days of Moira’s diagnosis, the fear of the unknown, and the moment she realized that most children’s books were not designed with kids like her daughter in mind. That realization pushed her to create her own CVI friendly materials, which later grew into Little Dandelion Press, a publishing imprint dedicated to accessibility, inclusion, and joyful literacy for all learners. Her perspective as a writer, designer, and advocate gives families a grounded, real world look at what CVI can feel like at home and how small changes in design can open the door to connection and learning. She talks about the emotional weight parents carry during diagnosis, the hope that comes with understanding, and the joy she finds in creating stories that meet children where they are. If you want to explore CVI supportive books and resources, visit littledandelionpress.com. Whether you are a caregiver, educator, or parent beginning your own CVI journey, Rachel’s story offers comfort, clarity, and a reminder that every child deserves to be included in the magic of story.